Three brothers with rare neurological disorder raise awareness about debilitating disease
It took doctors five years to diagnose now 31-year-old Tim with a form of the rare neurological disorder ataxia. âAtaxia is a problem with balance that is due to dysfunction in the balance center of the brain or its connections to the inner ear or spinal ...
Thu, 20 Nov 2014 13:52:00 GMT
Exeter woman, Rebecca, 'laid bare' in nude charity calendar for rare disease
Rebecca Downing, who lives in Pinhoe, took part in a photo-shoot in the same style as the famous âWI Calendar Girlsâ style to raise funds and awareness for ataxia. She appears as âMs. Februaryâ for the âAtaxia Laid Bareâ calendar including five ...
Sat, 22 Nov 2014 02:53:00 GMT
Hear absolutely any song you want on WGRD-FM this afternoon in first 'GRD Radiothon'
Gregg "Free Beer" Daniels, Chris "Hot Wings" Michaels, normally heard mornings on 97.9, will be on the air from 3 to 7 p.m. this afternoon to raise money for and awareness of Ataxia Telangiectasia. Related: Jenison teen who fought rare disease for 10 years ...
Fri, 21 Nov 2014 13:48:00 GMT
Kentucky Reports Fourth Equine WNV Case of 2014
In a statement Kentucky Equine Programs manager E.S. "Rusty" Ford relayed that the unvaccinated 10-year-old Quarter Horse gelding presented with a fever and mild hind limb ataxia on Oct. 26. The horse's condition improved over the next three days ...
Fri, 21 Nov 2014 06:51:00 GMT
Top tennis player Isner headlines Avila fundraiser
In particular, his daughters, who both suffer from a rare nerve degenerative disease called Friedreichâs ataxia. âBefore we knew what they had, I never heard of Friedreichâs ataxia,â Avery said. âI didnât even know how to pronounce it.
Thu, 20 Nov 2014 00:00:00 GMT
Bio Blast Pharma Receives Orphan Drug Designation From U.S. FDA for Cabaletta for the Treatment of Spinocerebellar Ataxia Type 3
TEL AVIV, Nov. 19, 2014 (GLOBE NEWSWIRE) -- Bio Blast Pharma Ltd. (ORPN), a clinical-stage biotechnology company committed to developing clinically meaningful therapies for patients with rare and ultra-rare genetic diseases, announced today that it has ...
Wed, 19 Nov 2014 14:00:00 GMT
Discover friedreich ataxia therapeutic pipeline market review, H2 2014
Friedreich's ataxia is an autosomal recessive inherited disease that causes progressive damage to the nervous system. It manifests in initial symptoms of poor coordination such as gait disturbance; it can also lead to scoliosis, heart disease and diabetes ...
Thu, 20 Nov 2014 07:00:00 GMT
Church goes Victorian to help fight a rare disease
The disease, Friedreichâs ataxia, is an inherited disorder that gradually destroys the nerve tissue of the spinal cord, leaving the victim unable to move without a wheelchair and vulnerable to heart disease, diabetes and scoliosis. Medford resident ...
Mon, 17 Nov 2014 04:59:00 GMT
Make-A-Wish coming to Hannibal for one little princess
HANNIBAL, MO. -- A Hannibal girl will have her wish come true thanks to Make-A-Wish Missouri plans. Molly is 11 years old and she has ataxia. Ataxia leaves her without coordination because parts of her nervous system that control movement and balance are ...
Wed, 19 Nov 2014 15:52:00 GMT
CBMG To Keep On Your Radar, CEMP Gets Funding, MACK On Fast Track
Bio Blast Pharma Ltd.'s (ORPN: Quote) lead product candidate Cabaletta has been granted Orphan Drug Designation by FDA for the treatment of Spinocerebellar Ataxia Type 3 (commonly known as SCA3 and Machado Joseph disease). Cabaletta is under phase II study ...
Thu, 20 Nov 2014 00:19:00 GMT