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Teen's Brain Cancer Post-Surgery Goes Very Wrong

Video of Marissa. Click Here. Riverside, CA - Marissa was like any vibrant 17 year old - full of life with dreams, ambitions and hanging with friends. Then she hit a large speed bump in the road of life. She was diagnosed with a cancerous brain tumor. Thankfully, everything was removed and hasn't returned -- no cancer and no tumor.

However, a couple days after the surgery in February 2008, Ataxia set in. Now she has motor skill challenges and is in a wheel chair. Her loved ones have created this website and ask that you please donate so Marissa can get the treatments to help her fully recover. These treatments are not covered by insurance. Please watch the video with this article and follow the updates below.


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A Step In The Right Direction

Riverside, CA - Thanks to the generosity of family and friends, Marissa was able to pay the first injection on the road to recovery in November 2012. Although she did have improvements, her doctor says she still needs one or more injections. Please donate so Marissa can get the next round of treatments to help her fully recover. And also follow the updates below. Here's Marissa's video update June 2013...

Video Update. Click Here.

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It Feels Great to Donate

“Those who are happiest are those who do the most for others.”
- Booker T. Washington

“When we give cheerfully and accept gratefully, everyone is blessed.”
- Maya Angelou

Please help Marissa get her next medical treatment. Donate what feels right, if you were in her shoes.
Donate in right column

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Please Give Cheerfully...

Miss Marissa Donations

Your name:

Amount (USD):

Most recent donors
Samantha $20.00
Joe Quinteros $100.00
Marty $25.00
Mom $100.00
Mom $60.00
Total Amount $390.00
Target to reach $3000.00



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Updates



UPDATE June 10, 2013 - Posted video update above: "A Step In The Right Direction."

UPDATE January 25, 2013 - Marissa's mom wrote a children's book with Marissa helping on illustrations with the intention to raise money for a 2nd procedure at UCLA for Marissa and to help many others. 40% of profits will be evenly allocated to Children's Cancer Research and Stem Cell Therapy. To purchase books please go to Lulu.com

Besides these goals Marissa and her mom have begun passing out their books for free to seriously ill children at their local hospitals. They hope others will act in kind. Purchase 10-20 books and give to the pediatric ward at their local hospitals all across the USA! Marissa and her Mom's next stop is Loma Linda University Children's Hospital.

UPDATE: October 15, 2012 - Through this website and a local car wash sponsored by Carl's Jr. (@ Diamond Dr.) and the city of Lake Elsinore, Marissa received the procedure at UCLA. There were some improvements but not as much as expected. UCLA doctors informed us beforehand that some patients require 2 or 3 treatments for optimum results. This is the case for Marissa too. She needs more treatments. Please help.

UPDATE: February 5, 2012 - Fantastic News!! The fundraising car wash and website donations were a success. UCLA will be contacted Monday to schedule an appointment for Marissa's procedure. Thank you to everyone involved in the car wash and to all donors.

UPDATE: January 12, 2012 - Good news! UCLA's Institute for Neurological Research has discovered a simple procedure that repairs swelling and inflammation in virtually any brain trauma - including Ataxia. Doctors have witnessed incredible results in Ataxia patients including normal smooth movements in the arms and legs, better or normal speaking voice and even walking un-assisted using only a 4-prong cane.

After nearly four years of diligent, challenging and excruciating therapy, Marissa is excited to be one of the next patients. But she needs $3,900 to participate. If this procedure goes well, stem cell therapy may not be needed.



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Brain Ataxia Headlines

‘We’re not alone anymore’: 5th Race for Matt and Grace to support fight against Friedreich’s ataxia
Friedreich’s ataxia (FA) is a neuro-muscular, genetic disorder that affects one in roughly 50,000 people in the United States. It is debilitating, progressive and currently has no cure. Johnston native Matt DiIorio was diagnosed with the illness in 1994.
Sat, 23 Aug 2014 04:00:00 GMT

BioBlast Receives Notice Of Allowance From USPTO For Its Novel Fusion Protein-Based Platform For The Treatment Of Friedrich's Ataxia
TEL AVIV, Israel, Aug. 18, 2014 (GLOBE NEWSWIRE) -- BioBlast Pharma Ltd, (Nasdaq:ORPN) a clinical-stage biotechnology company committed to developing clinically meaningful therapies for patients with rare and ultra-rare genetic diseases, announced today it ...
Mon, 18 Aug 2014 05:24:00 GMT

From New Jersey to City via Suresh Gopi
THIRUVANANTHAPURAM: Ataxia is a condition with no known allopathic cure, in which the muscles do not obey one’s commands. But city student Namitha Sreekumar, who is Ataxic, hopes that one day she would be able to dance, reining in her unruly muscles.
Fri, 22 Aug 2014 17:46:00 GMT

Calmodulin binding transcription activator 1 (Camta1)-deficient mice as a model of ataxia and neurodegenerative disease
Camta1-deficient mice could be useful for identifying and evaluating therapeutic candidates to treat ataxia and neurodegenerative diseases. Mice with nervous system–specific deletion of Camta1 developed severe ataxia and showed loss of Purkinje neurons ...
Thu, 21 Aug 2014 13:32:00 GMT

Exome sequencing potentially valuable in diagnosing familial cerebellar ataxias
2. CES may be a high-yield diagnostic method for evaluating the presence of rare ataxia-causing mutations. Evidence Rating Level: 3 (Average) Study Rundown: A variety of pathologies may affect the cerebellum, a part of the brain essential for ...
Wed, 20 Aug 2014 07:37:00 GMT

Sunday polo event to support Ataxia UK (From The Oxford Times)
An afternoon polo event in support of a new Oxford branch of Ataxia UK is being held on Monday at Kirtlington Park. Ataxia is a distressing medical condition few will have heard of. No more would I have done, were it not for the fact that I have a close ...
Thu, 21 Aug 2014 16:15:00 GMT

My battle with Ataxia: rare condition won’t rob me of my independence (From Bournemouth Echo)
HE’S been barred from pubs because security staff wrongly assumed he was drunk. Now Sam Carson always carries a card which explains that he suffers with a rare neurological condition called ataxia which affects his balance and speech. Sam, who is 35 and ...
Wed, 20 Aug 2014 16:16:00 GMT

Pfizer Submits New Drug Application for Palbociclib ; BioBlast Receives Notice Of Allowance From USPTO For Ataxia
(BioMed Reports Via Acquire Media NewsEdge) Below is a look at some of the headlines for companies that made news in the healthcare sector on August 18, 2014. {nfg}Pfizer Inc. (PFE:NYSE) announced it has completed the submission of a New Drug Application ...
Mon, 18 Aug 2014 22:01:00 GMT

What's On guide for the coming week
Coffee, tea and cakes. At St Paul’s Church, Woodhouse Eaves, 2pm to 5pm. Alicia’s Fun Day. To support the research into Ataxia which 10-year-old Alicia Wilson suffers with. The Hut, Old Ashby Road. Noon to 3pm. Barbecue, stalls, games and refreshments ...
Thu, 21 Aug 2014 01:00:00 GMT

Exome Sequencing in the Clinical Diagnosis of Sporadic or Familial Cerebellar Ataxia
1 Program in Neurogenetics, Department of Neurology, David Geffen School of Medicine, University of California at Los Angeles 2 Department of Pathology and Laboratory Medicine, David Geffen School of Medicine, University of California at Los Angeles 3 UCLA ...
Mon, 18 Aug 2014 13:21:00 GMT


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