Three brothers with rare neurological disorder raise awareness about debilitating disease
It took doctors five years to diagnose now 31-year-old Tim with a form of the rare neurological disorder ataxia. â€śAtaxia is a problem with balance that is due to dysfunction in the balance center of the brain or its connections to the inner ear or spinal ...
Thu, 20 Nov 2014 13:52:00 GMT
SALFORD MAN HAS DATE OF DESTINY WITH ATAXIA
Eccles resident, Jonathan Kay, has stripped off to feature as Mr March in a new nude calendar for 2015 to help raise funds and make people aware of the neurological disorder ataxia. Few people are aware of the condition which affects ten thousand adults ...
Sun, 23 Nov 2014 00:00:00 GMT
Snapshot for Bio Blast Pharma Ltd (ORPN)
Bio Blast Pharma Receives Orphan Drug Designation From U.S. FDA for Cabaletta for the Treatment of Spinocerebellar Ataxia Type Published Nov 19, 2014 Bio Blast Pharma Announces Initiation of Its Canadian OPMD Clinical Study Center at McGill University ...
Wed, 26 Nov 2014 12:57:00 GMT
Disabled Oswestry woman laid bare for calendar
Julie Hainey, of Cabin Lane, has taken part in a photo-shoot in the same style as the famous WI Calendar Girls in order to raise funds and awareness for ataxia. Only around nine per cent of the general public are aware of ataxia, which affects 10,000 ...
Wed, 26 Nov 2014 10:13:00 GMT
Hear absolutely any song you want on WGRD-FM this afternoon in first 'GRD Radiothon'
Gregg "Free Beer" Daniels, Chris "Hot Wings" Michaels, normally heard mornings on 97.9, will be on the air from 3 to 7 p.m. this afternoon to raise money for and awareness of Ataxia Telangiectasia. Related: Jenison teen who fought rare disease for 10 years ...
Fri, 21 Nov 2014 14:55:00 GMT
Top tennis player Isner headlines Avila fundraiser
In particular, his daughters, who both suffer from a rare nerve degenerative disease called Friedreichâ€™s ataxia. â€śBefore we knew what they had, I never heard of Friedreichâ€™s ataxia,â€ť Avery said. â€śI didnâ€™t even know how to pronounce it.
Sun, 23 Nov 2014 00:00:00 GMT
Discover friedreich ataxia therapeutic pipeline market review, H2 2014
Friedreich's ataxia is an autosomal recessive inherited disease that causes progressive damage to the nervous system. It manifests in initial symptoms of poor coordination such as gait disturbance; it can also lead to scoliosis, heart disease and diabetes ...
Thu, 20 Nov 2014 07:00:00 GMT
Kentucky Reports Fourth Equine WNV Case of 2014
In a statement Kentucky Equine Programs manager E.S. "Rusty" Ford relayed that the unvaccinated 10-year-old Quarter Horse gelding presented with a fever and mild hind limb ataxia on Oct. 26. The horse's condition improved over the next three days ...
Fri, 21 Nov 2014 06:51:00 GMT
Bio Blast Pharma Receives Orphan Drug Designation From U.S. FDA for Cabaletta for the Treatment of Spinocerebellar Ataxia Type 3
TEL AVIV, Nov. 19, 2014 (GLOBE NEWSWIRE) -- Bio Blast Pharma Ltd. (ORPN), a clinical-stage biotechnology company committed to developing clinically meaningful therapies for patients with rare and ultra-rare genetic diseases, announced today that it has ...
Wed, 19 Nov 2014 14:00:00 GMT
Make-A-Wish coming to Hannibal for one little princess
HANNIBAL, MO. -- A Hannibal girl will have her wish come true thanks to Make-A-Wish Missouri plans. Molly is 11 years old and she has ataxia. Ataxia leaves her without coordination because parts of her nervous system that control movement and balance are ...
Wed, 19 Nov 2014 14:25:00 GMT