SALFORD MAN HAS DATE OF DESTINY WITH ATAXIA
Eccles resident, Jonathan Kay, has stripped off to feature as Mr March in a new nude calendar for 2015 to help raise funds and make people aware of the neurological disorder ataxia. Few people are aware of the condition which affects ten thousand adults ...
Sun, 23 Nov 2014 03:45:00 GMT
Three brothers with rare neurological disorder raise awareness about debilitating disease
It took doctors five years to diagnose now 31-year-old Tim with a form of the rare neurological disorder ataxia. âAtaxia is a problem with balance that is due to dysfunction in the balance center of the brain or its connections to the inner ear or spinal ...
Thu, 20 Nov 2014 13:52:00 GMT
Exeter woman, Rebecca, 'laid bare' in nude charity calendar for rare disease
Rebecca Downing, who lives in Pinhoe, took part in a photo-shoot in the same style as the famous âWI Calendar Girlsâ style to raise funds and awareness for ataxia. She appears as âMs. Februaryâ for the âAtaxia Laid Bareâ calendar including five ...
Fri, 21 Nov 2014 16:00:00 GMT
Hear absolutely any song you want on WGRD-FM this afternoon in first 'GRD Radiothon'
Gregg "Free Beer" Daniels, Chris "Hot Wings" Michaels, normally heard mornings on 97.9, will be on the air from 3 to 7 p.m. this afternoon to raise money for and awareness of Ataxia Telangiectasia. Related: Jenison teen who fought rare disease for 10 years ...
Fri, 21 Nov 2014 14:55:00 GMT
Discover friedreich ataxia therapeutic pipeline market review, H2 2014
Friedreich's ataxia is an autosomal recessive inherited disease that causes progressive damage to the nervous system. It manifests in initial symptoms of poor coordination such as gait disturbance; it can also lead to scoliosis, heart disease and diabetes ...
Thu, 20 Nov 2014 07:00:00 GMT
Kentucky Reports Fourth Equine WNV Case of 2014
In a statement Kentucky Equine Programs manager E.S. "Rusty" Ford relayed that the unvaccinated 10-year-old Quarter Horse gelding presented with a fever and mild hind limb ataxia on Oct. 26. The horse's condition improved over the next three days ...
Fri, 21 Nov 2014 06:51:00 GMT
Top tennis player Isner headlines Avila fundraiser
In particular, his daughters, who both suffer from a rare nerve degenerative disease called Friedreichâs ataxia. âBefore we knew what they had, I never heard of Friedreichâs ataxia,â Avery said. âI didnât even know how to pronounce it.
Thu, 20 Nov 2014 00:00:00 GMT
Bio Blast Pharma Receives Orphan Drug Designation From U.S. FDA for Cabaletta for the Treatment of Spinocerebellar Ataxia Type 3
TEL AVIV, Nov. 19, 2014 (GLOBE NEWSWIRE) -- Bio Blast Pharma Ltd. (ORPN), a clinical-stage biotechnology company committed to developing clinically meaningful therapies for patients with rare and ultra-rare genetic diseases, announced today that it has ...
Wed, 19 Nov 2014 14:00:00 GMT
Church goes Victorian to help fight a rare disease
The disease, Friedreichâs ataxia, is an inherited disorder that gradually destroys the nerve tissue of the spinal cord, leaving the victim unable to move without a wheelchair and vulnerable to heart disease, diabetes and scoliosis. Medford resident ...
Mon, 17 Nov 2014 04:59:00 GMT
Bio Blast Pharma Reports Third Quarter Financial Results
On August 18, received a notice of allowance from the U.S. Patent and Trademark Office on a patent covering its novel fusion protein for Friedrich's Ataxia (referred to as BB-FA) that is based on its mitochondrial protein replacement (mPRT) platform.
Fri, 21 Nov 2014 05:00:00 GMT