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Move Over Ice Bucket Challenge. Here Comes...
Fight Ataxia's Pie In The Face Challenge. Watch Video


Teen's Brain Cancer Post-Surgery Goes Very Wrong

Video of Marissa. Click Here. Riverside, CA - Marissa was like any vibrant 17 year old - full of life with dreams, ambitions and hanging with friends. Then she hit a large speed bump in the road of life. She was diagnosed with a cancerous brain tumor. Thankfully, everything was removed and hasn't returned -- no cancer and no tumor.

However, a couple days after the surgery in February 2008, Ataxia set in. Now she has motor skill challenges and is in a wheel chair. Her loved ones have created this website and ask that you please donate so Marissa can get the treatments to help her fully recover. These treatments are not covered by insurance. Please watch the video with this article and follow the updates below.


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A Step In The Right Direction

Riverside, CA - Thanks to the generosity of family and friends, Marissa was able to pay the first injection on the road to recovery in November 2012. Although she did have improvements, her doctor says she still needs one or more injections. Please donate so Marissa can get the next round of treatments to help her fully recover. And also follow the updates below. Here's Marissa's video update June 2013...

Video Update. Click Here.

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It Feels Great to Donate

“Those who are happiest are those who do the most for others.”
- Booker T. Washington

“When we give cheerfully and accept gratefully, everyone is blessed.”
- Maya Angelou

Please help Marissa get her next medical treatment. Donate what feels right, if you were in her shoes.
Donate in right column

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Please Give Cheerfully...

Miss Marissa Donations

Your name:

Amount (USD):

Most recent donors
Samantha $20.00
Joe Quinteros $100.00
Marty $25.00
Mom $100.00
Mom $60.00
Total Amount $390.00
Target to reach $3000.00



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Updates



UPDATE September 15, 2014 - The organizers at FightAtaxia.org intend to pass the ice bucket challenge donations and get Ellen DeGeneres to do the pie in the face challenge on her show. (This video is really shaky because Marissa filmed it.)





UPDATE June 10, 2013 - Posted video update above: "A Step In The Right Direction."

UPDATE January 25, 2013 - Marissa's mom wrote a children's book with Marissa helping on illustrations with the intention to raise money for a 2nd procedure at UCLA for Marissa and to help many others. 40% of profits will be evenly allocated to Children's Cancer Research and Stem Cell Therapy. To purchase books please go to Lulu.com

Besides these goals Marissa and her mom have begun passing out their books for free to seriously ill children at their local hospitals. They hope others will act in kind. Purchase 10-20 books and give to the pediatric ward at their local hospitals all across the USA! Marissa and her Mom's next stop is Loma Linda University Children's Hospital.

UPDATE: October 15, 2012 - Through this website and a local car wash sponsored by Carl's Jr. (@ Diamond Dr.) and the city of Lake Elsinore, Marissa received the procedure at UCLA. There were some improvements but not as much as expected. UCLA doctors informed us beforehand that some patients require 2 or 3 treatments for optimum results. This is the case for Marissa too. She needs more treatments. Please help.

UPDATE: February 5, 2012 - Fantastic News!! The fundraising car wash and website donations were a success. UCLA will be contacted Monday to schedule an appointment for Marissa's procedure. Thank you to everyone involved in the car wash and to all donors.

UPDATE: January 12, 2012 - Good news! UCLA's Institute for Neurological Research has discovered a simple procedure that repairs swelling and inflammation in virtually any brain trauma - including Ataxia. Doctors have witnessed incredible results in Ataxia patients including normal smooth movements in the arms and legs, better or normal speaking voice and even walking un-assisted using only a 4-prong cane.

After nearly four years of diligent, challenging and excruciating therapy, Marissa is excited to be one of the next patients. But she needs $3,900 to participate. If this procedure goes well, stem cell therapy may not be needed.



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Brain Ataxia Headlines

Three brothers with rare neurological disorder raise awareness about debilitating disease
It took doctors five years to diagnose now 31-year-old Tim with a form of the rare neurological disorder ataxia. “Ataxia is a problem with balance that is due to dysfunction in the balance center of the brain or its connections to the inner ear or spinal ...
Thu, 20 Nov 2014 13:52:00 GMT

SALFORD MAN HAS DATE OF DESTINY WITH ATAXIA
Eccles resident, Jonathan Kay, has stripped off to feature as Mr March in a new nude calendar for 2015 to help raise funds and make people aware of the neurological disorder ataxia. Few people are aware of the condition which affects ten thousand adults ...
Sun, 23 Nov 2014 00:00:00 GMT

Disabled Oswestry woman laid bare for calendar
Julie Hainey, of Cabin Lane, has taken part in a photo-shoot in the same style as the famous WI Calendar Girls in order to raise funds and awareness for ataxia. Only around nine per cent of the general public are aware of ataxia, which affects 10,000 ...
Wed, 26 Nov 2014 10:13:00 GMT

Snapshot for Bio Blast Pharma Ltd (ORPN)
Bio Blast Pharma Receives Orphan Drug Designation From U.S. FDA for Cabaletta for the Treatment of Spinocerebellar Ataxia Type Published Nov 19, 2014 Bio Blast Pharma Announces Initiation of Its Canadian OPMD Clinical Study Center at McGill University ...
Wed, 26 Nov 2014 12:57:00 GMT

Hear absolutely any song you want on WGRD-FM this afternoon in first 'GRD Radiothon'
Gregg "Free Beer" Daniels, Chris "Hot Wings" Michaels, normally heard mornings on 97.9, will be on the air from 3 to 7 p.m. this afternoon to raise money for and awareness of Ataxia Telangiectasia. Related: Jenison teen who fought rare disease for 10 years ...
Fri, 21 Nov 2014 14:55:00 GMT

Enzymes That Fix Broken DNA at Times Do Destroy It
Cimprich said. "Recent work has also implicated these hybrids in neurodegenerative diseases, including Fragile X syndrome, Friedreich's ataxia and amyotrophic lateral sclerosis type 4," said Julie Sollier, PhD, the lead author of the paper and a ...
Thu, 27 Nov 2014 02:12:00 GMT

Top tennis player Isner headlines Avila fundraiser
In particular, his daughters, who both suffer from a rare nerve degenerative disease called Friedreich’s ataxia. “Before we knew what they had, I never heard of Friedreich’s ataxia,” Avery said. “I didn’t even know how to pronounce it.
Sun, 23 Nov 2014 00:00:00 GMT

Discover friedreich ataxia therapeutic pipeline market review, H2 2014
Friedreich's ataxia is an autosomal recessive inherited disease that causes progressive damage to the nervous system. It manifests in initial symptoms of poor coordination such as gait disturbance; it can also lead to scoliosis, heart disease and diabetes ...
Thu, 20 Nov 2014 07:00:00 GMT

Bio Blast Pharma Receives Orphan Drug Designation From U.S. FDA for Cabaletta for the Treatment of Spinocerebellar Ataxia Type 3
TEL AVIV, Nov. 19, 2014 (GLOBE NEWSWIRE) -- Bio Blast Pharma Ltd. (ORPN), a clinical-stage biotechnology company committed to developing clinically meaningful therapies for patients with rare and ultra-rare genetic diseases, announced today that it has ...
Wed, 19 Nov 2014 14:00:00 GMT

Kentucky Reports Fourth Equine WNV Case of 2014
In a statement Kentucky Equine Programs manager E.S. "Rusty" Ford relayed that the unvaccinated 10-year-old Quarter Horse gelding presented with a fever and mild hind limb ataxia on Oct. 26. The horse's condition improved over the next three days ...
Fri, 21 Nov 2014 06:51:00 GMT


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