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Move Over Ice Bucket Challenge. Here Comes Fight Ataxia's
Pie In The Face Challenge. Watch Video


Teen's Brain Cancer Post-Surgery Goes Very Wrong

Video of Marissa. Click Here. Riverside, CA - Marissa was like any vibrant 17 year old - full of life with dreams, ambitions and hanging with friends. Then she hit a large speed bump in the road of life. She was diagnosed with a cancerous brain tumor. Thankfully, everything was removed and hasn't returned -- no cancer and no tumor.

However, a couple days after the surgery in February 2008, Ataxia set in. Now she has motor skill challenges and is in a wheel chair. Her loved ones have created this website and ask that you please donate so Marissa can get the treatments to help her fully recover. These treatments are not covered by insurance. Please watch the video with this article and follow the updates below.


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A Step In The Right Direction

Riverside, CA - Thanks to the generosity of family and friends, Marissa was able to pay the first injection on the road to recovery in November 2012. Although she did have improvements, her doctor says she still needs one or more injections. Please donate so Marissa can get the next round of treatments to help her fully recover. And also follow the updates below. Here's Marissa's video update June 2013...

Video Update. Click Here.

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It Feels Great to Donate

“Those who are happiest are those who do the most for others.”
- Booker T. Washington

“When we give cheerfully and accept gratefully, everyone is blessed.”
- Maya Angelou

Please help Marissa get her next medical treatment. Donate what feels right, if you were in her shoes.
Donate in right column

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Please Give Cheerfully...

Miss Marissa Donations

Your name:

Amount (USD):

Most recent donors
Samantha $20.00
Joe Quinteros $100.00
Marty $25.00
Mom $100.00
Mom $60.00
Total Amount $390.00
Target to reach $3000.00



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Updates



UPDATE September 15, 2014 - The organizers at FightAtaxia.org intend to pass the ice bucket challenge donations and get Ellen DeGeneres to do the pie in the face challenge on her show. (This video is really shaky because Marissa filmed it.)





UPDATE June 10, 2013 - Posted video update above: "A Step In The Right Direction."

UPDATE January 25, 2013 - Marissa's mom wrote a children's book with Marissa helping on illustrations with the intention to raise money for a 2nd procedure at UCLA for Marissa and to help many others. 40% of profits will be evenly allocated to Children's Cancer Research and Stem Cell Therapy. To purchase books please go to Lulu.com

Besides these goals Marissa and her mom have begun passing out their books for free to seriously ill children at their local hospitals. They hope others will act in kind. Purchase 10-20 books and give to the pediatric ward at their local hospitals all across the USA! Marissa and her Mom's next stop is Loma Linda University Children's Hospital.

UPDATE: October 15, 2012 - Through this website and a local car wash sponsored by Carl's Jr. (@ Diamond Dr.) and the city of Lake Elsinore, Marissa received the procedure at UCLA. There were some improvements but not as much as expected. UCLA doctors informed us beforehand that some patients require 2 or 3 treatments for optimum results. This is the case for Marissa too. She needs more treatments. Please help.

UPDATE: February 5, 2012 - Fantastic News!! The fundraising car wash and website donations were a success. UCLA will be contacted Monday to schedule an appointment for Marissa's procedure. Thank you to everyone involved in the car wash and to all donors.

UPDATE: January 12, 2012 - Good news! UCLA's Institute for Neurological Research has discovered a simple procedure that repairs swelling and inflammation in virtually any brain trauma - including Ataxia. Doctors have witnessed incredible results in Ataxia patients including normal smooth movements in the arms and legs, better or normal speaking voice and even walking un-assisted using only a 4-prong cane.

After nearly four years of diligent, challenging and excruciating therapy, Marissa is excited to be one of the next patients. But she needs $3,900 to participate. If this procedure goes well, stem cell therapy may not be needed.



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Brain Ataxia Headlines

New Hope Might Be on Horizon for People with Ataxia
People diagnosed with ataxia traditionally haven't been offered much hope. The debilitating genetic disorder affects muscle coordination, making everything from walking to holding objects difficult, and even causing death. Reporter Sarah Blazonis has more ...
Sun, 14 Sep 2014 14:58:00 GMT

FARA race to help local victims
Race, walk or roll Saturday, Sept. 20, at the 5th annual Race for Matt and Grace, a fundraiser for two local young adults suffering from Friedreich’s Ataxia (FA). FA is a rare, progressive, debilitating neurological disease caused by a lack of energy ...
Mon, 15 Sep 2014 07:32:00 GMT

Families to ‘Walk n’ Roll’ on Sept. 20 for ataxia that afflicts many
If not for the universal campaign of the Ice Bucket Challenge, the Amyotrophic lateral sclerosis (ALS) or Lou Gehrig’s disease may have been just that – a disease that has no cure. Now, ALS is known worldwide. But unknown to many, another debilitating ...
Fri, 12 Sep 2014 01:00:00 GMT

Elizabeth Newman
Visitation will be from 1 to 2 p.m. Wednesday at the funeral home. Memorials may be made to The National Ataxia Foundation, 2600 Fernbrook Lane, Suite 119, Minneapolis, MN 55447-4752, or Farmer City Rehabilitation and Health Care. Elizabeth was born July ...
Mon, 15 Sep 2014 22:07:00 GMT

Ataxia Patient Leaves Wheelchair Behind and Walks in 5k thanks to BalanceWear®
APPLETON, Wis.--(BUSINESS WIRE)-- Any disease or chronic illness that takes away a person’s ability to move freely can seriously affect their outlook on life. Add to it an inability to control their muscle movements and balance and self-confidence will ...
Wed, 10 Sep 2014 10:40:00 GMT

At 24, Woman Discovers She Was Born Without A Key Brain Structure, The Cerebellum
Certainly, adults who develop illnesses, or incur injuries, that affect the function of the cerebellum (such as cerebellar ataxia) usually suffer profound difficulties with movement, including being unable to stand or walk. Recently its also become ...
Mon, 15 Sep 2014 08:26:00 GMT

Florence faces the mile, overcomes
The 26-year-old Covington woman has Freidrich’s ataxia, a wasting neurological disease that left her confined to a wheelchair with no hope of walking again — until she met physical trainer Kellye Williams in a grocery parking lot. For the past year ...
Mon, 15 Sep 2014 11:30:00 GMT

'I planned my own funeral': Misdiagnosed mum celebrated her new lease of life
The mother-of-two had understood since her teenage years that she was suffering from Friedreich's ataxia (FA) and expected to be in a wheelchair at the age of 18 and dead by 30. Karin, 51, from Timperley, Cheshire, said: "As a child I knew I couldn't do ...
Mon, 15 Sep 2014 11:45:00 GMT

WNV Confirmed in Jefferson County, Oregon, Horse
Some horses show asymmetrical or symmetrical ataxia. Equine mortality rate can be as high as 30-40%. The clinical signs of WNV can be consistent with other important neurologic diseases such as equine encephalitis, rabies, and equine herpesvirus ...
Mon, 15 Sep 2014 15:13:00 GMT

Ataxia Patient Leaves Wheelchair Behind and Walks in 5k thanks to BalanceWear®
Any disease or chronic illness that takes away a person's ability to move freely can seriously affect their outlook on life. Add to it an inability to control their muscle movements and balance and self-confidence will be affected. Deb Nett of Appleton ...
Wed, 10 Sep 2014 10:46:00 GMT


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