Riverside, CA - Marissa was like any vibrant 17 year old - full of life with dreams, ambitions and hanging with friends. Then she hit a large speed bump in the road of life. She was diagnosed with a cancerous brain tumor. Thankfully, everything was removed and hasn't returned -- no cancer and no tumor.
However, a couple days after the surgery in February 2008, Ataxia set in. Now she has motor skill challenges and is in a wheel chair. Her loved ones have created this website and ask that you please donate so Marissa can get the treatments to help her fully recover. These treatments are not covered by insurance. Please watch the video with this article and follow the updates below.
A Step In The Right Direction
Riverside, CA - Thanks to the generosity of family and friends, Marissa was able to pay the first injection on the road to recovery in November 2012. Although she did have improvements, her doctor says she still needs one or more injections. Please donate so Marissa can get the next round of treatments to help her fully recover. And also follow the updates below. Here's Marissa's video update June 2013...
UPDATE June 10, 2013 - Posted video update above: "A Step In The Right Direction."
UPDATE January 25, 2013 - Marissa's mom wrote a children's book with Marissa
helping on illustrations with the intention to raise money for a 2nd
procedure at UCLA for Marissa and to help many others. 40% of profits
will be evenly allocated to Children's Cancer Research and Stem Cell
Therapy. To purchase books please go to Lulu.com
Besides these goals Marissa and her mom have begun passing out their
books for free to seriously ill children at their local hospitals. They
hope others will act in kind. Purchase 10-20 books and give to the
pediatric ward at their local hospitals all across the USA! Marissa and
her Mom's next stop is Loma Linda University Children's Hospital.
UPDATE: October 15, 2012 - Through this website and a local car wash sponsored
by Carl's Jr. (@ Diamond Dr.) and the city of Lake Elsinore, Marissa
received the procedure at UCLA. There were some improvements but not as
much as expected. UCLA doctors informed us beforehand that some
patients require 2 or 3 treatments for optimum results. This is the
case for Marissa too. She needs more treatments. Please help.
UPDATE: February 5, 2012 - Fantastic News!! The fundraising car wash
and website donations were a success. UCLA will be contacted Monday to
schedule an appointment for Marissa's procedure. Thank you to everyone
involved in the car wash and to all donors.
UPDATE: January 12, 2012 - Good news! UCLA's Institute for Neurological
Research has discovered a simple procedure that repairs swelling and
inflammation in virtually any brain trauma - including Ataxia. Doctors
have witnessed incredible results in Ataxia patients including normal
smooth movements in the arms and legs, better or normal speaking voice
and even walking un-assisted using only a 4-prong cane.
After nearly four years of diligent, challenging and excruciating
therapy, Marissa is excited to be one of the next patients. But she
needs $3,900 to participate. If this procedure goes well, stem cell
therapy may not be needed.
New Hope Might Be on Horizon for People with Ataxia People diagnosed with ataxia traditionally haven't been offered much hope. The debilitating genetic disorder affects muscle coordination, making everything from walking to holding objects difficult, and even causing death. Reporter Sarah Blazonis has more ... Sun, 14 Sep 2014 10:09:00 GMT
Florence faces the mile, overcomes The 26-year-old Covington woman has Freidrichâs ataxia, a wasting neurological disease that left her confined to a wheelchair with no hope of walking again â until she met physical trainer Kellye Williams in a grocery parking lot. For the past year ... Sun, 14 Sep 2014 19:01:00 GMT
Top tennis player Isner headlines Avila fundraiser In particular, his daughters, who both suffer from a rare nerve degenerative disease called Friedreichâs ataxia. âBefore we knew what they had, I never heard of Friedreichâs ataxia,â Avery said. âI didnât even know how to pronounce it. Wed, 10 Sep 2014 22:37:33 GMT
Friedreich Ataxia Drugs Pipeline: New analysis available The Â´Friedreich Ataxia - Pipeline Review, H1 2014Â´, provides an overview of the Friedreich AtaxiaÂ´s therapeutic pipeline. This report provides comprehensive information on the therapeutic development for Friedreich Ataxia, complete with comparative ... Mon, 08 Sep 2014 08:46:00 GMT